The ALS Association
"The ALS Association is the world’s leading ALS organization, made up of volunteers who are living with ALS, loved ones, caregivers, advocates, and dedicated staff. The ALS Association's goal is to make ALS livable for everyone, everywhere, until they can cure it.
ALS is a fatal neurodegenerative disease that effects the brain's ability to communicate with muscles throughout the body. People living with ALS become progressively more paralyzed and trapped in their own body until even their lungs don’t work anymore. On average, people affected by ALS live just 2-5 years after diagnosis.
The ALS Association is on the ground in all 50 states providing support for people living with ALS and their loved ones while funding the most promising ALS research in the world. They lead local and national advocacy efforts to deliver more funding for ALS research and better policies for those impacted by the disease.
Thanks to the ALS Ice Bucket Challenge and the generous support of donors, the ALS Association has been able to dramatically accelerate the fight against ALS by funding the development of new ALS treatments, by discovering new ALS genes, by creating new global research collaborations, and by significantly expanding access to ALS care.
They are committed to making sure every person living with ALS, regardless of where they live, can access high-quality care and effective treatments."
Please contact Erin Becks at erin.becks@als.org for more information or visit the website.